Shared Stories and Experiences

Nobody should have to hide because of a Rare Disease. On the contrary! You should talk about it to give yourself and others courage.

This website is meant to become an information platform about people suffering from a Rare Disease or having been cured from one. We want to give these people a face and a voice to talk about themselves and their illnesses.

Would you like to share your experience with a Rare Disease on this platform? We look forward to your support. Do you have any questions? Then please contact us. We will gladly help you put your text together or meet for an interview. 

We guarantee you absolute privacy at all times.